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| Pushing
For More Pennsylvania Assisted Living Regulations |
Summary:
An advocacy group in Pennsylvania
is pushing for more regulations to help protect Pennsylvania's 50,000-plus
assisted living residents.
Written by: The staff at Assisted Living Directory |
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Assisted Living unfortunately all too often
plays out like a soap opera. I do news alerts for assisted living
- which is a service that many news organizations and search
engines offer that allow you to receive daily alerts to your
e-mail box on the subjects you are interested in. I do mine
through the New York Times, and Google, and my subject, of course,
is assisted living.
Almost daily, I am surprised at the types of
articles that surface in the news sphere and blogsphere. They
often times play out like something out of a bad daytime soap.
Some of the more common stories are about assisted living residents
(most often with dementia or Alzheimer's) wandering away from
the facilities. Sometimes they are found safe hours or even
days later - confused, hungry and dehydrated. However, other
times, the story is not so happy, as these residents have at
times been found frozen in the snow, dead, or injured in some
other way.
I have seen many stories pertaining to food
poisoning, or where an entire facility came down with a food-borne
illness. Another story I remember was of a woman who got a hold
of some cleaning chemicals that were left out, and unfortunately
ingested them. She had dementia, and thought the chemicals were
juice.
In my opinion, assisted living is growing too
fast for states to keep up with regulation, and quality standards
are not consistent. Regulations and standards can vary from
state to state, as the federal government has very little to
do with how assisted living facilities are operated.
Pennsylvania, I am happy to report, has a new
group (relatively) who is pushing for quality standards in Pennsylvania
state regulations covering assisted living facilities. This
group, called the The Pennsylvania Assisted Living Consumer
Alliance (PALCA) formed in 2008, is a new organization of consumers,
family members and advocates for the elderly and persons with
disabilities.
I learned about this group in the same, unconventional
way that I often times learn about new news or things happening
in the assisted living industry - a member of this group posted
a comment on my blog. Actually, it was just the website address
and nothing else - but I did go to the website to find out more.
I learned that there are over 50,000 people
in Pennsylvania who live in what we might call assisted living
facilities. Unfortunately, in most states, the term assisted
living is very loosely used, and at times doesn't really mean
what it says. I have seen facilities list themselves as "assisted
living type care" or "assisted home care" - and
sometimes these "facilities" are simply someone's
residential home trying to pass themselves off as an assisted
living facility, when they offer sub-standard care, and would
fail most safety and food inspections. Many of them might be
operating without a license of any kind, or without adequately
trained staff.
This is why there are so many unfortunate accidents,
and thus, regular, disturbing news stories coming out of the
assisted living industry. Most elderly folks who choose to live
in an assisted living environment are not able to care for themselves,
or make rational decisions regarding their care and safety.
This is exactly why we need more regulations
and watchdogs in this industry - just as this group in Pennsylvania
is helping to achieve. The Pennsylvania General Assembly last
year passed a bill to license the fast-growing assisted living
industry - a good step - however, there is some concern that
the passage of Act 56 may be just "window dressing."
We hope more states follow suit. The goal in
the assisted living industry should be zero accidents, zero
deaths, and maximum happiness. Pennsylvania is most certainly
heading in the right direction.
- by the staff at Assisted Living Directory
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| Responses
to this article: |
| Mitchell
Wrote:
I think all states are going to have to tighten down on the assisted
living industry, especially as it is slated for explosive growth
in the coming few years.
14 November 2011 at 8:41 am |
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| Rhonda
Wrote:
I could write a book about the problems with Waiver programs that
provide "help/care" to disabled and sick/dying consumers.
It is all about substandard care. Those living in their own homes
and are in a Home Based Community Independent living Waiver program
get NO CARE, Those who "provide the care may not even have
a high school edu., just have to be 18 yrs of age. They are to clean,
but then that gets debated too, as each definition of cleaning is
different, for me it means to have a clean house, but for these
waiver programs it is just to pick up some of the clutter, wash
dishes and if a little egg is left on the plates or pans, well that's
OK. They can do your laundry, and you have to hold your breath at
what may come out of the washer, will it be clean, will it tear
your skin off when you try to wear them later and cooking, well
that is another hodge-podge in and of itself altogether.Most of
the food is inedible as most don't have a clue how to cook. After
cooking the kitchen would not pass most food and safety inspections.
But hey, who cares and who is gonna know, especially when these
consumers have no family resources, and/or live alone. I am in such
a waiver program, and when I went into this program I had less than
20 mins of "training", approx 4 days later I had major
surgery that was so severe as to put me into a medically induced
coma to kept my pain from killing me literally. I was under the
impression I was to fill out the attendants time sheets like a schedule,
but being so sick and drugged up I got confused and needed more
help, the agency I was with never came to help, even when they saw
for themselves that I was having difficulties with applications
and other paper-work. This went on for quite awhile as I was having
approx 2 and1/2 major surgeries a yr. Then to my surprise what was
a close friend became jealous and angry with me and actually wished
me to hurry up and die, decided to talk with the atty gen dpt and
now I am looking at Medicaid fraud charges and so are some of the
attendants I had all because I was unable to do the timesheets correctly
(hrs worked were correct) times and dates became hard for me to
keep track of. Now I am told that I should not have been doing to
the timesheets as that was the job of the attendants. Yet NO ONE
told anyone of us that. There is no protection for the consumer
who is dealing with survival and then to find out that by cleaning
my house that was fraud, no cleaning, just pick up clutter, cook
whatever food and serve it even if it falls on the floor. Watering
my plants is considered fraud. Cleaning my walls to keep down the
dust and or moldy mildew is fraud even when you have severe lung
cancer and only have one lung left. So take WARNING if considering
a Home based waiver program and it did nothing good for me and has
turned my happiness, health and world upside down and on its way
to hell. As sick as I am the Atty Gen wants to make an example out
of me, to show that even the dying are not safe from prison. Consumers
BEWARE AND HEED THIS warning, it is not about you or your health
or safety, only about the numbers which brings in the most money.
I will die before I go to jail, but what a way to spend my final
days. THIS IS A TRUE Biography, Don't think it can't happen to you
or your loved ones. Rhonda
16 July 2010 at 5.16 pm |
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Victoria
Wrote:
Regarding Medicaid in Assisted Living. It will not work the same
as medicaid in a nursing home. Money will supposedly be distributed
to persons on a waiver bases, However, once again the waivers, will
(when available) only be available to persons living in assisted
living. The process is on track and the last reported date for new
licensure will be July 2010. The hope is that the waiver process
will take effect on or about the same time.
The entire process will benefit the consumer and Long Term Living
Communities. As a GM in a home that will apply for licensure I look
forward to providing quality care for seniors who deserve to remain
where they are most comfortable. Victoria
1 October 2009 at 6:44 pm |
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| Pauline
Wrote:
My sister-in-law is living in an assisted living facility in Pennsylvania
and has only enough money for "personal pay" for a few
more months. The Director told her that she will have to move, that
they "can not afford her"..she has no place to go and
certainly, my husband & I do not have room for her...we are
not wealthy by any means...my question is: What can be done and
is it legal for them to move her out...where are they moving her....on
the street? Pauline
4 October 2009 at 7:44 pm |
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| Lou
Wrote:
Does Medicaid fund assisted living under the new legislation in
pennsylvania?
11 June 2009 at 7:30 pm |
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| Victoria
Wrote:
Assisted Living regs are passed, in place and worth the change for
owners of PCH's to convert to ALF. However consumer groups have
had a hand in stagnating the process due to demands that DO NOT
neccessarily address safety and welfare as much as they address
luxury and amenities. Thus the regs are being revised causing a
delay in the entire process. I agree there are concerns that MUST
be addressed, however as the Administrator in a 90 bed facility,
that is thourughly inspected annually, I suspect that the horror
stories mentioned above, while devastating, are rare. If reimbursement
is to occur Asst Living regs must be reasonalbe, financially attainable
and enforced. This way EVERONE will benefit. Victoria
4 June 2009 at 12:14 pm |
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| Sue
Wrote:
How does the medicaid funding for assisted living work in PENNSYLVANIA
3 June 2009 at 7:21 pm |
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| Robert
Wrote:
My mother was just moved from Sunrise Senior Living. They shouldn't
even be allowed to work as an assisted living facility. They are
the worst. The carpets smell, the employees are untrained, the corporate
office hangs up on you and the buildings are extremely unsafe Robert
26 March 2009 at 11:26 am |
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| Charles
Wrote:
Does anyone know anything about the new medicaid law for assisted
living that is supposed to be passed this year in Pennsylvania.
We are waiting for help with medicaid in PA for assisted living
and I can not find out any information about this new law that I
here will be passed. I hear it is supposed to help pay for assisted
living facilities in PA. Thank You Charles Dott236@aol.com
15 March 2009 at 12:38 pm |
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| Mary
C. Wrote:
My brother lives in an Personal Care home in Washington, PA (I live
in New Mexico). When I visited him on Thanksgiving, I was surprised
in that the home seemed very dark & dingy. When we picked him
up to hopefully go out to eat, he was dressed very poorly. I was
not at all happy about his curcumstances, even though he seemed
to like the help at the home. He was also very hungry & had
three (?) helpings of everyghint. When I asked the assistant about
this, she told me that this was how diabetics were, they lose their
ability to know when they are full. I check online with the Mayo
clinic & this only happens when the diabetic is not receivning
enough insulin!! Is there someone in PA I could contact about this
home & have it inspected? He is on Medicare & Medicaid &
we (my other brother & I) are not wealthy by any means. Thank
you for any help. Mary
12 Dec 2008 at 3:42 pm |
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| Mike
B. Wrote:
My mother has been in a facility in Butler, PA. for many years,
and she has had extraordinary care. I understand that this might
not be the norm, though.
20 Aug 2008 at 10:11 am |
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| George
Wrote:
I would like to buy a small assisted living business. What should
I know about the industry before I buy? Are they more difficult
to finance? Thank you! George I live in Western Pa.
George
10 Nov 2008 at 07:11 pm |
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